Finding Homes for Autistic Adults

July 27, 2024

Housing Options for Adults with Autism

When it comes to finding suitable housing options for adults with autism, there are various resources available through government and private organizations, as well as non-profit organizations. These organizations play a crucial role in providing information, support, and funding for individuals with disabilities, including those on the autism spectrum.

Government and Private Organizations

Government organizations at the federal, state, and local levels offer resources and programs to assist individuals with autism in finding suitable housing options. These organizations provide information about available supports and funding opportunities. Some examples include:

The IACC - HHS directory includes government and private organizations that provide information about housing options, supports, and funding for individuals with disabilities. This comprehensive directory can be a valuable resource for families seeking housing options for their loved ones with autism.

Private organizations also play a significant role in providing assistance and support for adults with autism. These organizations may offer housing programs, financial assistance, and guidance on navigating the housing system. Autism Speaks, a national non-profit organization, provides resources and information on housing and community living for individuals with autism. Additionally, the Corporation for Supportive Housing (CSH) helps communities create permanent housing with services to prevent and end homelessness.

Non-Profit Organizations

Non-profit organizations dedicated to supporting individuals with autism often offer valuable resources and services related to housing. The ILRU Directory of Centers for Independent Living and Statewide Independent Living Councils, for example, provides resources for independent living research utilization. These organizations can provide information, guidance, and connections to local housing resources and programs.

It's important to keep in mind that the availability of housing options and the extent of support may vary depending on the location. Local autism organizations and community centers are great sources of information about housing options specific to your area. They can provide insights into local resources and connect you with relevant programs and services.

By tapping into the resources provided by government and private organizations, as well as non-profit organizations, families can access valuable information and support in their search for suitable housing options for adults with autism.

Research Studies and Resources

When it comes to finding suitable homes for autistic adults, it is crucial to rely on research studies and resources that provide valuable insights and guidance. In this section, we will explore two notable resources: the "A Place in the World" study and the Policy Research Brief.

A Place in the World Study

A groundbreaking study in 2020 called "A Place in the World: Fueling Housing and Community Options for Adults with Autism and Other Neurodiversities (APITW)" serves as a definitive tri-sector resource for various stakeholders, including the housing industry, direct service providers, policymakers, scholars, and researchers. This comprehensive study, conducted by Autism Speaks, provides invaluable insights into the housing needs and challenges faced by autistic adults.

The "A Place in the World" study examines different aspects of housing, including models, best practices, and innovative approaches to support autistic adults in achieving meaningful and independent lives. It sheds light on the diverse range of housing options available, as well as the specific supports and accommodations required to meet the unique needs of individuals on the autism spectrum.

Policy Research Brief

In addition to the "A Place in the World" study, another valuable resource is the Policy Research Brief published by the Research and Training Center on Community Living at the College of Education and Human Development, University of Minnesota. This brief summarizes the results of a national study on the status of Home and Community-Based Services (HCBS) for individuals with autism spectrum disorders (ASD) [1].

The Policy Research Brief provides an overview of the current landscape of housing options and community living for autistic adults. It highlights the challenges faced by individuals with autism and emphasizes the importance of comprehensive supports and services. By examining the status of HCBS, this resource aims to inform policymakers and service providers about the gaps and areas of improvement in the provision of housing and community-based supports for autistic adults.

By referring to these research studies and resources, parents and caregivers of autistic adults can gain valuable insights into the housing options available and the necessary supports needed to create a safe, inclusive, and supportive environment. These resources serve as important references for professionals and policymakers in developing effective strategies and policies to address the housing needs of autistic individuals.

Types of Housing Options

When considering housing options for adults with autism, it's important to explore different types of accommodations that cater to their specific needs. Here are three common types of housing options available:

Group Homes

Group homes are individual residences located in traditional neighborhoods where each person with autism has their own bedroom. These homes are designed to provide a supportive and inclusive living environment. Group homes can be staffed with counselors or full-time employees who assist residents with their daily living needs. The availability of Home and Community-Based Services (HCBS) waiver supports significantly affects the choice of living arrangements. Group homes offer a sense of community and provide opportunities for social interaction with peers in a structured setting. For more information on group homes and other housing options, you can refer to our article on autism resources in Illinois.

Assisted Living Facilities

Assisted living facilities are another option for adults with autism. These facilities offer additional services such as medication administration and direct assistance with daily living essentials. They can serve 25 or more residents and provide a supportive environment for individuals with disabilities. However, it's important to note that finding assisted living facilities specifically tailored to individuals with autism may be challenging due to public policy changes that promote greater community access for individuals with disabilities. To learn more about the available resources and services in Georgia, you can refer to our article on autism services in Illinois.

Skilled Nursing Facilities

Skilled nursing facilities are the last resort for individuals with severe special needs who require skilled medical care 24/7. These facilities may be necessary when it is impossible or unsafe to provide such care in the individual's private residence or a group home. Skilled nursing facilities have trained medical professionals who can meet the complex medical needs of individuals with autism. However, these facilities are typically reserved for individuals with the most intensive care requirements.

It's important to consider the specific needs and preferences of the individual with autism when exploring housing options. Each type of housing option has its own benefits and considerations. By understanding the different types of housing available, parents and caregivers can make informed decisions that prioritize the well-being and independence of their loved ones with autism.

Supportive Housing Models

When it comes to providing housing options for adults with autism, various supportive housing models are available to cater to their specific needs. These models aim to create a living environment that promotes independence, safety, and overall well-being. In this section, we will explore three common supportive housing models: independent living, supervised group homes, and supervised apartments.

Independent Living

Independent living is a housing model that allows individuals with autism to live in their own apartments or houses with minimal support services. In this model, the focus is on developing complex problem-solving skills rather than day-to-day living tasks. Community members or professionals may be part of the support system, providing assistance as needed.

The key aspect of independent living is fostering autonomy and self-sufficiency. Individuals have the freedom to make their own decisions and take responsibility for their daily routines. While some support may be available, such as periodic check-ins from professionals or community members, the goal is to enable individuals to manage their lives independently.

Supervised Group Homes

Supervised group homes are another supportive housing option for adults with autism. In this model, multiple residents with disabilities live together in a shared home. The level of supervision and support varies depending on the needs of the residents. Trained staff members are available to provide assistance with daily tasks, promote social interaction, and ensure the overall well-being of the residents.

Group homes provide a supportive and structured environment, allowing individuals with autism to live in a community setting. They offer opportunities for socialization, skill-building, and a sense of belonging. The level of supervision can vary, ranging from round-the-clock support to periodic check-ins, depending on the specific needs of the residents.

Supervised Apartments

Supervised apartments offer a level of independence and support that falls between independent living and group homes. In this housing model, individuals with autism live with fewer people, typically one or two roommates, in an apartment setting. While daily supervision is not provided, a paid professional visits several times a week to offer support and assistance.

Residents of supervised apartments are responsible for their daily tasks, such as work, meal preparation, and personal care. The professional visits help ensure that residents have the necessary support and guidance to navigate any challenges they may encounter. This model allows individuals to experience a more independent living arrangement while still having access to necessary support services.

Each supportive housing model has its own advantages and limitations. It's important for families and caregivers to consider the unique needs and preferences of individuals with autism when choosing the most suitable housing option. By providing appropriate support and a nurturing environment, these housing models aim to empower adults with autism to lead fulfilling and independent lives.

Challenges and Solutions

When it comes to finding suitable housing options for adults with autism, there are several challenges that need to be addressed. Limited resources and waiting lists, as well as funding cuts, are among the key difficulties faced by individuals and families in the search for appropriate housing solutions.

Limited Resources

The current shortage of housing options for adults with autism has resulted in limited resources, making it challenging to find suitable living arrangements. According to the Autism Society, it is crucial that every adult with autism is empowered to have choice and control over their living environment, regardless of the limited resources available. The rising rates of autism, which have nearly doubled in less than 20 years, have contributed to the current housing crisis for adults with autism.

To address this challenge, it is essential to explore alternative housing models that can effectively utilize the available resources and provide suitable living options for adults with autism. For example, independent living programs with on-site and community supports could be a more cost-effective solution, saving tens of thousands of dollars per year per person, freeing up resources to service more individuals and preventing economic hardship on families.

Waiting Lists and Funding Cuts

Waiting lists for suitable housing options for adults with autism are typically long, with periods of ten years not being uncommon. This further exacerbates the challenges faced by individuals and families seeking appropriate housing arrangements. The rise in autism rates over the past two decades necessitates an increase in the number of residential units available for individuals with autism [4].

Moreover, funding cuts pose a significant challenge to the development and maintenance of housing options for adults with autism. The proposed cut of $763 billion to Medicaid over the next ten years, as outlined in the 2019 federal budget, will have catastrophic effects on people with developmental disabilities who rely on Medicaid funds for housing, education, and vocational training [3]. It is crucial to advocate for continued funding and support at both the government and community levels to ensure that appropriate resources are available to meet the housing needs of adults with autism.

Addressing the challenges of limited resources, waiting lists, and funding cuts requires collaboration between government agencies, non-profit organizations, and the community. By working together, it is possible to develop sustainable housing solutions that provide a safe and supportive environment for adults with autism to thrive.

Addressing Specific Needs

When it comes to finding suitable homes for autistic adults, it's crucial to address their specific needs and preferences. Autistic individuals often have regular routines, strong preferences concerning personal items, sensory sensitivities, and intense special interests. Housing accommodations and assisted living facilities need to respect and accommodate these considerations.

Routine and Preferences

Routine plays a vital role in the lives of many autistic adults. Having a stable and predictable environment can help reduce anxiety and provide a sense of security. When considering housing options, it's important to choose a setting that allows for the establishment of consistent routines. This may involve personalized schedules, designated spaces for specific activities, and respect for the individual's preferences regarding their living environment.

Autistic individuals often have strong preferences when it comes to personal items, such as clothing, furniture, or even the colors of their living spaces. Providing autonomy in decision-making and allowing them to personalize their living arrangements can contribute to their overall well-being and sense of belonging.

Transportation and Recreation

Transportation is closely related to the availability of adequate housing for autistic adults. Many autistics may need access to reliable transportation to attend essential activities such as work, medical appointments, and recreational outings. However, learning to drive can be a significant challenge for many autistics. Therefore, it's important to ensure that appropriate transportation options, such as accessible public transit or specialized transportation services, are available to meet their specific needs.

Recreational activities are significant for the well-being and socialization of autistic adults. However, traditional group activities organized by social service entities may not always cater to their specialized interests and preferences. Autistic individuals often have unique hobbies and intense special interests. Organizing group activities centered around these interests can provide opportunities for socialization and a sense of community. Additionally, engaging in activities outside their specific interests can help broaden their horizons and improve socialization into wider communities.

By addressing routine and preferences, as well as considering transportation and recreational activities, housing options for autistic adults can be better tailored to their specific needs. It's important for housing providers and communities to recognize and accommodate these considerations to create inclusive and supportive environments for autistic individuals.